Hi Alison,
Sorry your feeling so down, I've been on infliximab since the end of March (had 4 infusions) but like you it hasnt helped at all! If anything I feel worse.. There is another infusion anti tnf that they could try, when do you see your consultant next? I know how you feel and its such a waiting game. Whats your GP like? Might be worth making an appt to say how down you are feeling..
Hope things get better, thinking of you Love Ceri x

Hi Allison

Sorry to hear you are feeling so low, I can totally understand, it certainly is a lot of trial and error with all the drugs.

I have had RA for a couple of years but only commenced treatment with leflunomide, hydrooxy, and a array of other bits and pieces in Feb of last year. Due to inflammation levels still being high, at the beginning of October commenced infliximab, no improvement so in April I swapped the lef. for mtx, infact I had a CRP score at the end of June which read 104 ( never been over 70 before ) so obviously not working. Saw the consultant last week, no more infusions and will be starting Cimzia in due course. The only real side effect was severe itching and rash, I asked my GP for anti histamine tablets and they worked a treat.

I know infliximab does work very well for many people, and really hope this is the one for you.

Take care, Julia x



Just a note for Ceri

Sorry to hear you are not doing well with it, have been thinking of you, I m not sure how long you have to be on it before you can go to something else, in hindsight I should have tried to change earlier it was my idea to swap over from lef to mtx just hoping this would work. Julia x

Thanks Sheila, Still feeling rubbish and off work... Hope your not too bad and enjoying retirement.
Hi Julia, Good luck with the Cimzia hope I get chance to change soon, got appt with rheummie on 8th Aug so fingers crossed!
Allison, how are you feeling now? Hope youre a bit better.. Fingers crossed for everyone Love Ceri xx

Hello everyone, thank you for all your kind words and encouragement......I am feeling better today - not so down. I've been told it takes around 3 infusions before I notice any difference so I'm keeping everything crossed. You need the patience of a saint don't you?! Thanks again .....Allison x